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ACP Resources for Patients & Public
- All About Me Booklet
- Booklet - Planning for Your Future Care
- Booklet- Planning a Good Death (BBC)
- Flying Home- guide for people travelling abroad with advanced illness
- How to order hard copies of Planning for your Future care
- Information for people wanting to start conversations about the future
- Journal Article- Advance Care Planning Discussions- Patients & Carers Views of how they should be initiated 2019
- Leaflet - Will Writing Misconceptions
- Leaflet -Starting the conversation if someone close to you is dying
- Leaflet- Putting your house in order
- Patient leaflet - DNACPR decisions – NHS North West England
- Planning Ahead Resources - Dying Matters
- Short Film - I Didn’t Want That- Dying Matters
- Short Film - It helps to talk – based upon a Motor Neurone Disease scenario
- Short Film - Let’s talk about death and dying - Age UK Show all articles ( 3 )
ACP Resources for Professionals
- ACP Tips for General Practitioners
- ACP Training @ EoLP
- Advance Care Planning Toolkit
- Care Home Managers & Care Homes NICE ACP Quick Guide
- GP Education Masterclass 2
- Guide- Making decisions for people who work in health and social care
- How to order hard copies of Planning for your Future care
- NHS Guidance & Templates- Best Interests at the End of Life
- NHS Guidance on Advance Decisions to Refuse Treatment
- NHS Guide- Advance Decisions for Health and Social Care Professionals
- North West Coast ACP Framework
- Top Tips on Identifying Patients for Advance Care Planning
- Video - Advance Care Planning Training
Advanced Decisions to Refuse Treatment
Best Interest Decisions & Mental Capacity
Do Not Attempt Cardio-Pulmonary Resuscitation
- Best Practice Guidance for IMCA’s – Cardiopulmonary Resuscitation
- CPR patient information leaflet
- Decision making flow chart for DNACPR discussions
- DNACPR discussions - Strategies for opening up conversations
- Education - DNACPR scenarios- Care Home
- Education - DNACPR scenarios- community
- FAQ’s - uDNACPR
- Form- Lilac DNACPR March 2019 version ECNHST, Community & Primary Care
- Key Points - DNACPR for local Care Homes
- Key Points - DNACPR for professionals working within the local community
- Key Points -DNACPR Key for professionals working within hospital
- NHS leaflet - How DNACPR decisions relate to the Mental Capacity Act
- Patient leaflet - DNACPR decisions – NHS North West England
- Patient Leaflet- Decisions about CPR
- Patient Leaflet- DNACPR 2019 version ECNHST Show all articles ( 3 )
Education & Training
- ACP Education Events @ EoLP
- Dementia Education Events @ EoLP
- Education - DNACPR scenarios- Care Home
- Education - DNACPR scenarios- community
- Journal Article- Advance Care Planning Discussions- Patients & Carers Views of how they should be initiated 2019
- Learning Disabilities: Easy Read Guides
- Presentation - Preferred priorities for Care
- Video - Advance Care Planning Training
IMCA’s & Lasting Power of Attorney’s
Preferred Priorities for Care (PPC) / Advance Statement of Wishes
- Accessible version -Preferred Priorities for Care
- Document - Preferred Priorities for Care
- Electronic - Preferred Priorities for Care
- Flyer - Preferred Priorities for Care
- NHS Guidance on Advance Statement of Wishes
- Poster - Preferred Priorities for Care
- Presentation - Preferred priorities for Care
- Thinking Ahead Advance Care Plan – Gold Standards Framework
Information coming soon
After Death
Bereavement
- Bereavement & Coronavirus - Cruse Bereavement Care
- Bereavement by suicide and other sudden, traumatic death - NHS information
- Bereavement Needs Assessment Guidance. Hospice UK
- Easy Read - Grief booklet for people with learning disabilities’
- Helping yourself as you cope with the loss of a parent
- How to help someone close to you who has been bereaved
- NHS self-help booklet
- North Coast SCN Bereavement Service Improvement Resources
- What to do if someone you know has been bereaved
Child Bereavement
Cheshire Information & Resources
- Care Home Poster - Principles of Care & Support for the Dying Patient
- Care Plan for End of Life - East Cheshire Trust Hospital
- Care Plan for End of Life continuation sheets
- Care Plan for End of Life Mid Cheshire Hospital Foundation Trust
- GP Education Masterclass 2
- Hospital Poster - Principles of Care & Support for the Dying Patient
- Primary Care Poster - Principles of Care & Support for the Dying Patient
- Rapid Discharge Leaflet ECNHST
- Rapid Discharge Pathway ECNHST
- Starting Dose for Anticipatory Medications - Last Days of Life
- Verification of Death Community Nurses CCICP Standard Operating Procedure
- Verification of Expected Death ECNHST Community Nurses Trust Policy
- Verification of Expected Death Form ECNHST
- Visiting Patients at the End of Life
- What to expect in the last days of life
National Guidelines & Resources
- Booklet - Caring for Carers - When someone is dying in hospital
- Booklet - ICD’s in patients who are end of life - information for professionals
- Care Quality Commission - Five Priorities for Care of the Dying Person
- General Medical Council – Treatment and Care Towards the End of Life Guidance End of Life
- GP Education Masterclass 2
- ICD Device Deactivation Principles - British Heart Foundation
- Leaflet - Five Priorities for Care of the Dying Person
- Leaflet - ICD deactivation
- Nurse Verification of Expected Death Guidance Hospice UK
- Poster - Five Priorities for Care of the Dying Person
- Professional Duties and Responsibilities - Priorities for Care of the Dying Person
- RCN Guidance on Confirmation or Verification of Expected Death by Registered Nurses
NEW Last Days of Life Template
- Cheshire Summary View for Last Days of Life Template 2019
- GP Last Days of Life Template Sept 2019
- How to Change Codes in the Last Days of Life Template
- How to Create the Last Days of Life Summary View
- Illustration of GP EMIS Template Coding Changes July 2019 Last Days of Life
- Last Days of Life Template- Cheshire Operational Procedure 2019
- Local NEWS article- Last days of Life Template Launch 3rd June 2019
- Poster- Key Messages Last Days of Life Template Launch 3rd June 2019
Recognising and talking about dying
Spirituality & Religion
Cheshire carer services & initiatives
Practical Information & Resources
- Benefits and financial advice Macmillan Cancer Support
- Booklet - Caring for Carers - When someone is dying in hospital
- Booklet - Caring for Carers - When someone is dying in hospital
- Booklet – Hello and How Are you? Macmillan Cancer Support
- Financial information when somebody has died
- Financial information when somebody has died
Information coming soon
Care After Death/Bereavement
Covid-19 News Feeds
Covid-19 Specific Guidelines
- Coronavirus NICE Guidance Critical Care
- COVID-19 and Palliative, End of Life and Bereavement Care in Secondary Care
- Covid-19 Infection Prevention and Control Guidelines for Healthcare Settings
- Management of cough COVID-19 Outbreak
- Medical Cause of Death Certification and Registration of Deaths Covid-19
- National Community Covid-19 Symptom Control Guidelines
- NHS England Palliative Care in Hospitals and Coronavirus
- NICE- Covid-19 Guidance
- Respiratory Failure-Clinical decision-making COVID-19 Outbreak
- Tips for Primary Care for patients with suspected Covid-19
- UK Gov- Coronavirus Bill- Summary of Impacts
Education & Training
End of Life Conversations
Escalation of Care/ Advance Care Planning
Symptom Management
- Breathlessness Algorithm- From Cheshire Blue Booklet 2019
- Community Pharmacies for Palliative Medications
- Management of cough COVID-19 Outbreak
- National Community Covid-19 Symptom Control Guidelines
- Respiratory Failure-Clinical decision-making COVID-19 Outbreak
- Starting Dose for Anticipatory Medications - Last Days of Life
Best Interests & Mental Capacity
Delirium
Dementia Carers
Dementia Tools & Working Documents
- Abbey Pain Assessment
- Eating & Drinking Well with Dementia
- Education - Dementia Core Skills Education & Training Framework
- Interactive Tool- Dementia Care Pathways
- Publication- A Primer for General Practice- Dementia Revealed
- Publication- Rules of Thumb
- Tool - Falls Assessment
- Tool -Behaviour Assessment Cohen Mansfield
- Tool- Behaviour Assessment ABC Checklist
- Tool- Behaviour Assessment ABC Record Chart
- Tool-Is Your Care Home Dementia Friendly
Guidelines
E-Learning
Learning Resources
- Asset Based Approach to learning
- Communication skills workbook - Finding the Words
- Core Competencies for End of Life Care
- GP Education Masterclass 2
- GP Materclass in Personalised Care Planning
- Knowing Me! Dementia, Depression and Delirium - A Person Centred Education and Training resource
- The Education Collaborative for Eastern Cheshire - Education Strategy
- What can I do?- Interactive tool with practical messages for front line staff
The End of Life Partnership
Cheshire EPaCCS Resources
- Cheshire Care Record - What is this?
- Cheshire Care Record & EPACCS -Guidance on Enabling Data Sharing July 2019
- Cheshire EPaCCS consent position 2017
- Cheshire EPaCCS EMIS Searches with SNOMED codes added Jan 2020
- Cheshire EPACCS Landscape 2019
- Cheshire Summary View for Last Days of Life Template 2019
- EPaCCs Dataset - North West
- EPaCCs Digital Roadmap
- EPaCCS Patient Information leaflet
- Palliative Care GP Home Visit Form
- Palliative Care List Audit Form
- Weaver Vale Surgery PLT EPaCCS Presentation Sept 2019
Cheshire General Practice GMS Contract Support 2019-20
National EPaCCS Resources
Communication Skills Training
Communication with specific groups
- Booklet - Talking to Children about Death & Dying
- Communication failures involving doctors- General Medical Council Research
- Communication Skills Training @ EoLP
- Conversation Starter Kit for people with Alzheimer’s and Dementia
- Easy read booklets for people with Learning Disabilities – Marie Curie
- Fact Sheet Communication with a person with Dementia
- Leaflet - tips on working with an interpreter
- Poster for identifying language interpretation requirements
Starting the Conversation
Strategies for handling difficult situations
- Communications Skills Education Events @ EoLP
- Leaflet - Getting the facts right about death and dying
- Strategies for communicating the transition to palliative care
- The McGuire Unit Strategy - dealing with a demanding relative
- The McGuire Unit Strategy - dealing with an angry patient or relative
- The McGuire Unit Strategy - dealing with collusion
- The McGuire Unit Strategy - dealing with denial
- The McGuire Unit Strategy - dealing with the withdrawn patient
- The McGuire Unit Strategy - dealing with unrealistic expectations
- The McGuire Unit Strategy- handling uncertainty
- Tips for responding to a person who is angry
- Video- Breaking Bad News
- Video- Breaking Bad News by Telephone NHS Scotland
After Death Guidance & Resources
- Care After Death Guidance
- Care After Death Guidance for Professionals
- Confirmation and Certification of Death Guidance for GP’s
- Death Notification Template 2019
- Guidance for Medical Practitioners on Notification of Deaths Regulations 2019
- Nurse Verification of Expected Death Guidance Hospice UK
- Post Mortem Examination FAQ’s
- Quick Guide to Coroner Notification Changes 2019
- Regulations for Notification of Deaths 2019
Cheshire Practice Level Data
- Cheshire Care Record & EPACCS -Guidance on Enabling Data Sharing July 2019
- Cheshire EPaCCS EMIS Searches with SNOMED codes added Jan 2020
- EMIS National Information Standard Read Codes Palliative Care Cordination (EPaCCS) Template
- End of Life Profiles by CCG- NHS IQ
- QI GP Workshop Data Explained July 2019
- Read Codes for Cheshire EMIS End of Life Searches 2019-20
Coordinated Care
- Cheshire Care Record - What is this?
- Cheshire Summary View for Last Days of Life Template 2019
- GSF Register Report within EMIS- How to Guide.
- How to activate the EMIS End of Life Summary View
- How to Create the Last Days of Life Summary View
- Last Days of Life Template- Cheshire Operational Procedure 2019
- Palliative Care GP Home Visit Form
- Poster- Key Messages Last Days of Life Template Launch 3rd June 2019
- Video - EPaCCS
Early Identification
- Care Home Residents- Six Steps Programme
- Care Home SHADOW tool communications sheet
- Care Home SHADOW tool for early identification
- Care Home SHADOW Tool supplementary information
- Gold Standards Framework Proactive Identification Guidance
- Top Tips on GSF meetings
- Top Tips on Identifying Patients for Advance Care Planning
EoLP help and support
Local Resources
National Resources
Quality Improvement Information
Cheshire Specific Policies, Guidelines and Publications
Dementia Publications and Resources
- Information coming soon
Education Resources and Publications
Palliative & End of Life Care Reports
Palliative & End of Life Care Standards & Guidelines
Assessment & Performance Tools
- Care Home SHADOW tool communications sheet
- Care Home SHADOW tool for early identification
- Care Home SHADOW Tool supplementary information
- Diagnosing Dying- Potential Barriers’
- Functional Assessment Staging Tool (FAST) for Alzheimer’s
- GP Education Masterclass 2
- Mortality Review Audit Template
- Palliative Care Assessment Aide Memoire Tool GSF
- Palliative Performance Scale (PPS)
- Performance Status Score ECOG
- Performance Status Score Karnofsky
- SPARC assessment tool
EARLY Project
Palliative Care Meetings
Prognostic Indicators
- Care Home SHADOW tool for early identification
- Child Pugh (Liver Disease) Prognostic Indicator Tool
- Gold Standards Framework Proactive Identification Guidance
- GP Education Masterclass 2
- Guide- A Quick Guide to Identifying Patients for Supportive and Palliative Care
- PiPS Prognostic Tools for Advanced Cancer
Information coming soon
Information coming soon
Eastern Cheshire
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Care Homes
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Community & Primary Care
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Hospice - East Cheshire Hospice
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Hospital -East Cheshire Trust
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Other
South Cheshire
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Care Homes
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Community & Primary Care
- Central Cheshire Integrated Care Partnership - Community Nursing Service
- Central Cheshire Integrated Care Partnership – Community Stoke Service
- Central Cheshire Integrated Care Partnership – District Nurse Out of Hours
- Central Cheshire Integrated Care Partnership – Musculoskeletal Clinical Assessment Triage Service (MCATS) & Community Chronic Pain Management Service
- Community Hubs
- Continence Service
- Macmillan Lung Cancer Team
- Out of Hours (OOH)
- South Cheshire GP Practices
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Hospice - St Luke’s Cheshire Hospice
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Hospital- Mid Cheshire Hospital (Leighton)
- Information coming soon
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Other
- Central Cheshire Integrated Care Partnership – Community Stoke Service
- Central Cheshire Integrated Care Partnership – Musculoskeletal Clinical Assessment Triage Service (MCATS) & Community Chronic Pain Management Service
- Central Cheshire Integrated Care Partnership – Wheelchair Service
- Domiciliary Care Providers Cheshire East
- Pharmacy- Urgent Palliative Care Medications Stockists
- Understanding different roles in end of life care
Vale Royal
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Care Homes
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Community & Primary Care
- Central Cheshire Integrated Care Partnership - Community Nursing Service
- Central Cheshire Integrated Care Partnership – Community Stoke Service
- Central Cheshire Integrated Care Partnership – District Nurse Out of Hours
- Central Cheshire Integrated Care Partnership – Musculoskeletal Clinical Assessment Triage Service (MCATS) & Community Chronic Pain Management Service
- Community Hubs
- Continence Service
- Macmillan Lung Cancer Team
- Out of Hours (OOH)
- Vale Royal GP Practices
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Hospice - St Luke’s Cheshire Hospice
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Hospital- Leighton Mid Cheshire
- Information coming soon
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Other
- Central Cheshire Integrated Care Partnership – Community Stoke Service
- Central Cheshire Integrated Care Partnership – Musculoskeletal Clinical Assessment Triage Service (MCATS) & Community Chronic Pain Management Service
- Central Cheshire Integrated Care Partnership – Wheelchair Service
- Domiciliary Care Providers Cheshire East
- Pharmacy- Urgent Palliative Care Medications Stockists
- Understanding different roles in end of life care
Western Cheshire
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Care Homes
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Community & Primary Care
- Cheshire and Wirral Partnership Care Community Teams
- Cheshire and Wirral Partnership Out of Hours Community Service
- Cheshire and Wirral Partnership Trust GP Out of Hours Service
- Countess of Chester Specialist Palliative Care Team
- District Nurses
- GP Practices
- Out of Hours (OOH)
- Service - Macmillan Community Palliative Care Team
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Hospice of the Good Shepherd
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Hospital- Countess of Chester
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Other
Patient leaflets
- All About Me Booklet
- Booklet - Planning for Your Future Care
- Booklet- Planning a Good Death (BBC)
- Flying Home- guide for people travelling abroad with advanced illness
- Information for people wanting to start conversations about the future
- Leaflet - Will Writing Misconceptions
- Leaflet -Starting the conversation if someone close to you is dying
- Leaflet- Putting your house in order
- Patient Leaflet- Decisions about CPR
- Patient Leaflet- DNACPR 2019 version ECNHST
- What now? Questions to ask following a terminal diagnosis- Compassion in Dying
- Writing a Will
Quick Forms- Professionals
Staff Resilience
Agitation & Anxiety
Anorexia, Cachexia & Dysphagia
- Clinical Practice Summary Guidelines for Palliative Symptoms- North Coast SCN
- Dementia - Compromised swallowing guide
- East Cheshire Palliative Care Symptom Control Guidelines
- Eating Problems Information- Macmillan Cancer Support
- Guidelines for the management of feeding and swallowing problems in Dementia
- Macmillan Durham Cachexia Pack
- Mouth Problems Information- Macmillan Cancer Support
Blue Booklet - Cheshire
- Blue Booklet Education @ EoLP
- GP Brief -changes to the Blue Booklet 2018
- Nausea & Vomiting Algorithm - Cheshire Blue Booklet 2019
- Pain Algorithm from Cheshire Blue Booklet 2019
- Pharmacy- Urgent Palliative Care Medications Stockists
- Poster - Blue Booklet relaunch 2018
- PowerPoint - Cheshire Blue Booklet – what has changed
- Respiratory Tracet Secretions Algorithm
- Restlessness & Agitation Algorithm
- Video - Blue Booklet & Further Advice & Support
Condition Specific Guidelines & Resources
Emergencies’ in Palliative Care
Fatigue
Nausea & Vomiting & Constipation
Pain
- Basic End of Life Drug Information for Qualified Nurses - EoLP Cheshire
- Clinical Practice Summary Guidelines for Palliative Symptoms - North Coast SCN
- Distress Assessment Tool
- Doloplus assessment tool
- East Cheshire Palliative Care Symptom Control Guidelines
- NICE Guidance - Opioids for Pain Relief in Palliative Care
- Opioid use in renal impairment - UK medicines information
- Pain Algorithm from Cheshire Blue Booklet 2019
- Pain Assessment Tool – GSF
- Pain Assessment Tool using alphabetic acronym
- Resource- Abbey Pain Assessment Tool
- The Christie A to Z of Pain Relief
- The Discomfort Scale Assessment Tool (DS-DAT)
- Visual tool – neuropathic pain pathways
Respiratory Symptoms
- Breathlessness Algorithm- From Cheshire Blue Booklet 2019
- Clinical Practice Summary Guidelines for Palliative Symptoms- North Coast SCN
- Diaphragmatic breathing techniques
- East Cheshire Palliative Care Symptom Control Guidelines
- Mesothelioma Study Day @ EoLP
- Positions to help with breathing
- Respiratory Tracet Secretions Algorithm
Symptom Control Guidelines
- Clinical Practice Summary Guidelines for Palliative Symptoms- North Coast SCN
- Dementia Education Events @ EoLP
- East Cheshire Palliative Care Symptom Control Guidelines
- Nausea & Vomiting Algorithm - Cheshire Blue Booklet 2019
- Pain Algorithm from Cheshire Blue Booklet 2019
- Palliative Care Guidelines in Dementia
- Respiratory Tracet Secretions Algorithm
- Restlessness & Agitation Algorithm
- Starting Dose for Anticipatory Medications - Last Days of Life
- Symptom Control Study Events @ EoLP
- Symptom Specific Pathways - National Cancer Action Team
Syringe Pump
- Breathlessness Algorithm- From Cheshire Blue Booklet 2019
- Nausea & Vomiting Algorithm - Cheshire Blue Booklet 2019
- Policy - ECNHST Syringe Pump Policy
- Respiratory Tracet Secretions Algorithm
- Restlessness & Agitation Algorithm
- Syringe Pump Compatibility Tool- Palliative Care Matters
- Syringe Pump Education @ EoLP